Local Community Groups


The SASBAH Local Community Group Network

SASBAH’s Local Community Groups operate in four different districts across East and West Sussex. They offer the opportunity for all our service users, families and supporters to come together regularly to share experiences, to offer respite where needed, to improve understanding of the full range of support systems available, to help to increase social inclusion, and raise awareness in local communities through activities that the group decides it wishes to undertake.

Each group meets once a month (or more frequently if they wish), and it is for the group themselves to decide what they wish to do, or who they may wish to invite to help meet needs or provide information. Many of the groups also have a social agenda, which offers an important cohesive bond for support. Local promotional work and joint fundraising initiatives also feature in most of the groups.

The groups serve the following districts:

• Hastings and Rother (meet in Bexhill-on-Sea)

• Worthing and Adur (meet in Worthing)

• Mid Sussex (meet in Burgess Hill)

• Crawley and Horsham (meet in Crawley)


SASBAH staff are always on hand at each group meeting, and are able to help arrange any specific needs or activities, or invite speakers.

If you would like to join one of the groups as a volunteer or supporter; or you have spina bifida and/or hydrocephalus and would like to meet others; please contact Claire on 07920 576313


Sasbah Local Community Groups – Venues and Dates October 2018 – December 2018










Brighton & Hove



Please do get in touch if you live in the area and would welcome the opportunity to meet up with others in similar circumstances.





Crawley & Horsham

 Starbucks, 12/13 Queens Square, Crawley  RH10 1DY 

2nd Wednesday of each month


12.30 – 2.30pm

14th November

12th December

Hastings & Rother

Sidley Children’s Centre
121 Ninfield Road
TN39 5BD



Usually 1st Friday of each month but *2nd Friday in November

12noon – 2pm


9th November*

7th December

Mid Sussex



Waitrose Café

Market Place

Burgess Hill

RH15 9NP


Usually 4th Thursday but October’s moves to a Wednesday* and in December# we meet earlier for Christmas Lunch at The Woolpack

12noon – 2pm


31st October *

29th November

13th December#

Worthing & Adur


22-26 South Street

Worthing  BN11 


3rd Friday of each month

12noon – 2pm

19th October

16th November

21st December





















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